Today I attended the presentation of this year’s Shaking Tree Award. This annual award started in 2016, and is named after my friend Niels who received the first award during his ‘last lecture‘. Niels died a year ago. The Ministry of Healthcare has pledged to keep going with the award, in the spirit of Niels’ efforts: shake up the system, fighting unneeded and kafkaesque bureaucracy, have hands-on experience with the system at ‘the receiving end’ so you know what you’re talking about, have a sense of humor to go with it, and be able to ‘dance with the system‘.
The meeting was attended by a diverse range of people, from the healthcare domain, Niels’ family, and of course a smattering of Niels’ friends.
Before presenting this year’s nominees and the award, time was given to remembering Niels and the reason for this award. This was followed by two conversations between a previous winner and nominee and a representative of an institution they struggled with. First were Annette Stekelenburg and Ria Dijkstra, manager operations at a health care insurer. Annette has a son that needs tube feeding to survive. This situation will not change. Yet every year they need to apply for approval to continue receiving the materials needed. Annette and Ria had a frank conversation about what happened when Annette publicly announced she was fed up with this yearly bureaucracy that should be unneeded. Dijkstra explained how they thought that they had already changed the rules, making the renewal once every 5 years, but that the suppliers never knew, and that forms are being sent out in the insurers name that don’t actually exist anymore.
The second conversation was between Kathi Künnen, a previous nominee, and Betsie Gerrits, department head at UWV, the government agency in charge of employee insurance. Kathi is 29 and has incurable cancer. Because of that she has been determined to be 100% incapable of working, yet there are lots of phases where she actually does want to work. 25% of young professionals with cancer have an incurable form, and most want to remain active as long as possible. Yet the system tells them their ‘earning capacity is 0’ and with a stamp like that there’s no way to find paid activity. Here too, the conversation first of all made the two parties at the table see each other as individual human beings. And from it energy and potential solutions follow. Kathi said she needs reassurance that there can be administrative certainty (other than being tossed out as worthless), as her own life is fluid enough as it is and changing all the time.
I thought both conversations were impressive, and the type of thing we need much more of. Once you get past the frustration, anger and disbelief that often plays a role too, you can see the actual human being at the other side of the table. Dancing with the system is, in part, being able to have these conversations.
The award was presented by the previous winner, Tim Kroesbergen, and the secretary general of the Ministry Erik Gerritsen was host to the event, with Maarten den Braber as MC. The jury, consisting of Sanne (Niels’ wife) and the previous two winners, Annette Stekelenburg and Tim Kroesbergen, made their choice known from amongst the three nominees: Eva Westerhoff, Elianne Speksnijder and Geert-Jan den Hengst. All three nominees were presented by a video, as well as a conversation about their experiences.
Eva Westerhoff is a disability rights advocate & accessibility consultant who happens to be deaf. Next to her job at a bank, she does lots of volunteer work on diversity, inclusion & accessibility in information, communication & tech. She’s been knocking on doors in the Healthcare Ministry for over 20 years. Today she said that because of the political cycle, it seems you need to do everything again every four years or so, to keep awareness high enough.
Elianne Speksnijder is a professional fashion model, photographer and story teller. Lyme disease and epilepsy caused her to land in a wheelchair when she was 15. As she said today, an age which brings enough difficulties as it is. It took her a decade to accept that her wheels were a permanent part of her life. She’s 28 now, a woman with ambitions ‘on wheels’. When she was a teenager she sorely missed a role model (or rolling model, as the Dutch word ‘rolmodel’ can mean both). Now she is setting out to be that role model herself. She hopes for much more inclusivity in media, and challenges companies about it.
Geert-Jan den Hengst, is a 48 year old father of two adult children. He has MS and has been living the last decade or so in an environment that provides 24/7 care. His laptop is his core conduit to the rest of the world. Writing is a need for him. He blogs on his own blog, and writes for the local football team’s website, various media in his hometown and more. At the heart of his writing are everyday observations. He says he is “not a political animal, so I need to stay close to my everyday life in what I do”. Often those observations are examples of how life can be made impractical for someone in his position. He mentioned an early example that got him started: for the local football stadium all types of tickets could be bought online, except for …. tickets for wheel chair access. People with wheel chairs needed to come buy the tickets in person. The group least likely to be able to do that easily.
From all three nominees, I think the main takeaway is taking the time to share and listen to the actual stories of people. Especially when things get complicated or complex. Not news, there’s a reason I’ve been active in participatory narrative inquiry and sense making for a long time, but it bears repeating. Stories are our main way of ‘measurement’ in complex situations, to catch what’s going on for real, to spot the actual (not just the intended) consequences of our actions, structures and regulations, to see the edge cases, and to find the knobs to turn towards getting better results (and know what better actually is).
Jury chairman Tim Kroesbergen after reading the jury motivations for all three nominees, announced Eva Westerhoff as the new Shaking Tree Award winner.
Inside the Ministry a poem by Merel Morre is painted on the wall, that she wrote in honor of Niels ‘Shakingtree’.
A rough translation reads (anything unpoetic is all my doing)
shake goals awake
jump past rules
dance joints wider
dream chances free
out of bounds
as it grows
where it lighter
but never stops
In the ministy’s central hall all the pillars show a face of someone with the words “I care”. That and the poem are promising signs of commitment to the actual stories of people. The Ministry still has 24 statuettes in stock for the Shaking Tree Award, so there’s a likelihood they will keep the annual award up as well. But as this year’s winner Eva Westhoff warned, every 4 years the politics changes, so it’s better to make sure.